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    Update Four

    June 13, 2009 by Brandy Vencel

    Dear Family and Friends,

    Did you know that the name “Josiah” means “God has healed him”? Years ago, when our oldest son was in the NICU, we had already begun calling him by his middle name. But his given first name is actually Josiah, like his father, and when the nurses called him that, we encouraged it. After all, healing was exactly what we desired then.

    And now it is happening again, this time with my husband. Today was a day of progress. This morning, he was taken off of his ventilator. I stayed away because he was not allowed to speak for two hours after this, and I was afraid he’d try to talk with me and ruin his voice forever and ever and ever, as my four-year-old says.

    So when my mother-in-law and I arrived in the afternoon and he was sleeping, I was a little bit disappointed. And then he slept hour after hour, and the clock neared the hour when we would have to leave and still he didn’t speak, or really open his eyes. And then we were sent out while they tried to insert a feeding tube. This procedure failed {they have to do it carefully since he is so low on platelets}, and when I returned I didn’t have much time left with him.

    And then he suddenly awoke.

    He knew me and we had a real conversation. He told me he loved me for the first time since Sunday night. By talking to him, I was able to discern that he hasn’t been very aware of anything these past few days. Even though I was able to speak with him somewhat throughout this week, nothing seems to have made it into his long term memory.

    He asked the date. He didn’t understand why his brother was here. He was shocked to learn that he was in the ICU. And then he fearfully asked me what was wrong with him. Apparently, he didn’t realize the HUS-TTP could do this, so he thought there was something dreadfully wrong {as if this hasn’t been dreadful}. I just told him it was the same HUS he’s been fighting, and the fight got really bad, but we are so thankful because he’s done a very good job. He looked relieved, and then fell promptly to sleep.

    What a way to end the day.

    As far as numbers go, some of them worsened. His platelets were down, and his LDH was up, both having moved in the opposite direction of where we want them to go. But the change wasn’t too dramatic, and his renal function numbers came back improved, so there was still good news in the works.

    I actually think a hard part is coming soon. Being a survivor of this is an arduous journey, I’m guessing. I can foresee the many nights I’ll be spending in the hospital before he comes home.

    But at least he’s coming home. God has been gracious to us.

    There are many things to pray for for Siah. His body still has so many places to heal. But I also ask you to pray tonight for a man from my church named Joe. I’m sorry that I can’t remember his last name tonight. All afternoon, I was watching the room across from us. A man came in from surgery with his head bandaged, and I could tell it was serious. I didn’t realize at the time that this man was from our congregation. Please pray for his family, and for him as he recovers from the stroke he had this morning.

    Thank you all for the kindnesses of the day. The phone calls. The emails. The letters in the mail. We treasure them all, even when we can’t respond to them all.

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  • Reply Emily June 13, 2009 at 5:47 pm

    God is good. Continuing to pray here for Si and your family, and will do so for Joe as well.

  • Reply Anonymous June 13, 2009 at 4:30 pm

    Dear Brandy

    Praying for you and Si from over here in Australia.

    May you know His peace which passes all understanding.

    In Him

    Meredith in Aus

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