Oh, Friends and Family,
I wish I could write and have better news to share. Thank you for being willing to go through this with our family. We feel your hands holding us up in prayer. Today, Si received a prayer blanket from a ministry at church, so I spent the afternoon in a chilly waiting room literally covered in prayer.
My day began with a phone call to the hospital to check on Si, because his mom had flown in and gave me a night off. While I was on the phone with her, Si had two seizures. During one of the seizures, he momentarily lost his vision.
Shortly after this he became blind and also mute. He was very agitated and pulled out both of his IVs. Once this happened, he acquired a new diagnosis, TTP, to tack onto the end, making it HUS-TTP. The TTP is basically descriptive of the fact that this is now effecting his brain.
To be honest, I was falling apart for most of the day and felt like there wasn’t much hope, but the ICU doctor, Dr. Ahmed, told me that I just can’t expect this to happen quickly. He said that the plasmapheresis isn’t something you really see results from in 24-48 hours, but it is a long-term solution. So tonight I have a measure of comfort.
In addition to the plasmapheresis, he began dialysis today.
My biggest concern right now is that he is being given megadoses of IV antibiotics when they do not seem to be medically indicated. Would you please pray that it becomes obvious whether he needs them or not? He was convinced that they were causing some of his symptoms yesterday.
Tonight, for the first time since Thursday, the children are home with me {and my mother-in-law} in their own beds. They are all thankful to be home.
We love you all. Thanks to everyone who donated blood today. I was told that the blood bank was packed with people! It is overwhelming to think of the thousands of people who are praying for our little family. I am truly humbled.
Blessings to you all. I am reminded all over again of why I love our church. Each and every one of you has been a living reminder.
Love,
Brandy
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